Personal Genomics Project Raises Questions About Data Donation, Data of Deceased

Dec 29, 2017

|

Premium

SAN FRANCISCO (GenomeWeb) – One scientist's quest to make use of direct-to-consumer genomic tools to piece together health implications of his family's genomes has led to renewed questions about data sharing, consent, and what to do with the genomic data of the deceased.

Get the full story with
GenomeWeb Premium

Only $95 for the
first 90 days*

GenomeWeb Premium gives you:
✔ Full site access
✔ Interest-based email alerts
✔ Access to archives

Never miss another important industry story.

Try GenomeWeb Premium now.

You may already have institutional access!

Check if I qualify.

Already a GenomeWeb or 360Dx Premium member?
Login Now.

*Before your trial expires, we’ll put together a custom quote with your long-term premium options.

Not ready for premium?

Register for Free Content
You can still register for access to our free content.

Breaking News

The Scan

Another Look

A New Zealand minister says the country's genetic modification laws need to be re-examined to help combat climate change, the New Zealand Herald reports.

Some More Than Others

A new analysis finds some cancers receive more nonprofit dollars than others.

Gene Variant's Possible Role

An Australian mother's conviction in the deaths of her children may be re-examined after finding that two of the children carried a cardiac arrhythmia-linked gene variant.

Science Finds Sex-Biased Gene Expression in Mammals, More

In Science this week: comparative analysis of sex differences in mammal gene expression, and more.

Featured White Papers

Cell Engineering 101

CRISPR 101

Gene Knockouts: How CRISPR Is Used to Inactivate Genes

BlueBee Data Security & Compliance

Jul

23

Featured Webinar

A Novel Quality Improvement Model to Support Molecular Testing of Oncology Patients

This webinar will discuss how the Molecular Pathology Laboratory at the University of Oklahoma (OUMP) is using a new quality improvement model to support molecular testing of oncology patients.

Jul

30

Featured Webinar

Single-Cell Sequencing Reveals Clonal Heterogeneity in Acute Lymphoblastic Leukemia

This webinar will outline a project that performs large-scale and integrative single-cell genome and transcriptome profiling of pediatric acute lymphoblastic leukemia (ALL) cases at diagnosis, during drug treatment, and in case of relapse.

Jul

31

Featured Webinar

Considerations and Impact of Implementing Targeted NGS in Myeloid Malignancies

This webinar will provide a first-hand look at how a molecular laboratory validated and implemented a targeted next-generation sequencing-based myeloid assay to expedite the assessment of myeloid malignancies and assist in the understanding of myeloid cancers.

Aug

29

Featured Webinar

Biobanking at Scale to Support Precision Medicine

This webinar will outline how RUCDR Infinite Biologics, the world's largest university-based biorepository, has implemented workflows and processes to support precision medicine applications.

Menu