Personal Genomics Project Raises Questions About Data Donation, Data of Deceased

Dec 29, 2017

Premium

SAN FRANCISCO (GenomeWeb) – One scientist's quest to make use of direct-to-consumer genomic tools to piece together health implications of his family's genomes has led to renewed questions about data sharing, consent, and what to do with the genomic data of the deceased.

Get the full story with
GenomeWeb Premium

Only $95 for the
first 90 days*

GenomeWeb Premium gives you:
✔ Full site access
✔ Interest-based email alerts
✔ Access to archives

Never miss another important industry story.

Try GenomeWeb Premium now.

You may already have institutional access!

Check if I qualify.

Already a GenomeWeb or 360Dx Premium member?
Login Now.

*Before your trial expires, we’ll put together a custom quote with your long-term premium options.

Not ready for premium?

Register for Free Content
You can still register for access to our free content.

Breaking News

The Scan

Making a Mark

A new analysis finds that nearly half the late-stage clinical trials sponsored by a US National Cancer Institute program influence patient care.

Optimistic, Though Cautious

Technology Review reports that sickle cell patients are optimistic about gene editing to treat their disease, but are worried about how available it will be.

And Maybe a Fee

The owner of the GEDmatch website tells CBS12 he is considering charging law enforcement a fee to use the site.

Nature Highlights Study Finding Differences in Infant Gut Microbiome by Delivery Mode, More

In Nature this week: babies born by caesarean section are more likely to have altered gut microbiota profiles, and more.

Featured White Papers

Nextera DNA Flex Library Preparation for Soil Shotgun Metagenomics Analysis

De Novo Genome Assembly with Illumina Sequencing and the NRGene DeNovoMAGIC Solution

The 'Dark Matter' of Cancer Genomics: Revealing Undetected Structural Variants

A High-Performance Solution Combining CleanPlex OncoZoom Cancer Hotspot Panel and SOPHiA AI for Rapid Characterization of Somatic Mutations

Sep

25

Featured Webinar

Biomarker Evaluation for CAR T-Cell Therapy: Impact on Drug Development

CAR T-cell therapy is an innovative form of immunotherapy that is finding increasing use for the management of blood cancers.

Oct

01

Featured Webinar

Future-Proofing a Genomics Core: Considerations When Adopting New NGS Technologies

This webinar will provide an overview of the sequencing capabilities of the Tumor Profiling Unit at the Institute for Cancer Research in London, with a focus on the lab's strategy for bringing in new genomics technologies.

Oct

08

Featured Webinar

Integration of Single Cell and Spatially Resolved Methods for Understanding Neurodegeneration in ALS

This webinar will discuss a study that used spatial transcriptomics to gain insight into the molecular mechanisms of amyotrophic lateral sclerosis (ALS), a progressive neurodegenerative disease.

Oct

10

Featured Webinar

Laboratory Validation of a Kit-Based Liquid Biopsy NGS Assay

This webinar will provide an overview of how a pathology laboratory validated a 77-gene next-generation sequencing-based liquid biopsy assay.

Menu