The Office of the National Coordinator for Health Information Technology's ability to test new standards and policies is hindered without $5 million Obama requested for FY2016.
With NIH funds, organizations will build the 1 million volunteer cohort, while FDA's draft guidances will inform regulation of genetic tests critical for precision medicine.
The proposed bill would provide the agency with a $2 billion budget increase for the second year in a row after more than a decade of stagnant funding.
Within the consortium community healthcare systems can contribute and access each other's data on cancer patients' molecular profiles and treatment outcomes.
The agency said it would disperse the funds to the clinic over the course of five years to collect, store, and distribute biospecimens for precision medicine research.
In a point-counterpoint in the Boston Globe, researchers discuss the potential of gene editing to prevent Lyme disease, but also the pitfalls of doing so.
