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Whether, and How, to Give DNA Data Back

Geneticists are debating on Twitter whether study participants should have access to their genetic information, Nature News reports.

Cornell University geneticist Charles Danko turned to his Twitter followers for help to convince his institutional review board that they should have such access. Columbia University's Yaniv Erlich responded that millions of people have access to their raw genetic data through services like 23andMe with no adverse events reported.

This discussion, Nature News notes, has been raging for some time, and has mostly centered on the difficulty of accurately predicting disease risk from genetic data.

"The objection to data sharing that I see come up often is that incidental findings from a patient's data set may tell them something about their susceptibility for disease. In some cases, participants may not want to know," Danko tells Nature News. "However, I am not convinced that the risk outweighs a subject's right to access their own data."

The Genomes 2 People research program, which is directed by Harvard Medical School's Robert Green, also gives Danko some advice, should he return such data to participants, suggesting that the presentation of results be customized for each test type.

The Scan

Removal Inquiry

The Wall Street Journal reports that US lawmakers are seeking additional information about the request to remove SARS-CoV-2 sequence data from a database run by the National Institutes of Health.

Likely to End in Spring

Free lateral flow testing for SARS-CoV-2 may end in the UK by next spring, the head of Innova Medical Group says, according to the Financial Times.

Searching for More Codes

NPR reports that the US Department of Justice has accused an insurance and a data mining company of fraud.

Genome Biology Papers on GWAS Fine-Mapping Method, COVID-19 Susceptibility, Rheumatoid Arthritis

In Genome Biology this week: integrative fine-mapping approach, analysis of locus linked to COVID-19 susceptibility and severity, and more.