The Director of the Pediatric Cancer Precision Medicine Program, a highly experienced leader with in-depth knowledge in the overall field of project management and recognized expertise in strategic planning as it relates to collaborative academic research, is part of a highly collaborative team at the Genomics Institute working on projects such as the California Kids Cancer Comparison (CKCC), a project that brings the power of big data bioinformatics to help pediatric oncologists match cancer therapies to individual children based on their genomic profiles, and MedBook, a data analysis and social media platform. In this position, the Program Director will frequently solve problems that demand analysis of unique issues that are lacking precedent and structure; manage multifaceted programs that require high-level strategy formulation and complex policy and regulatory review and decision-making, process and resource administration; function with a high degree of autonomy within a collaborative, startup-like environment; and independently operate amongst academic and staff researchers, administrators, external collaborators, including UC Medical Centers, UC Office of the President (UCOP), California Governor's office, pediatric oncologists, regulating bodies, and other key stakeholders across the entire UC system to apply the principles of precision medicine and to reform regulatory practices around data sharing, open sourcing, privacy, confidentiality and security, including but not limited to Health Insurance Portability and Accountability Act (HIPAA) rules.
UCSC's pediatric cancer and predicision medicine projects involve genomic research using data collected from sources external to UCSC, including partner hospitals, research universities and other non-profit organizations. For instance, as a part of the California Initiative to Advance Precision Medicine (CIAPM) launched by Gov. Jerry Brown, UCSC's CKCC project enables UC Medical Centers to design novel clinical trials that use DNA and RNA sequencing of patients' tumors to guide treatments. As a leader of CKCC, the Program Director applies advanced technical project management frameworks and methods to this university, medical center, UCOP and CIAPM objective to resolve highly complex issues that require analysis of situations and information and in-depth evaluation of variable factors. The PM determines methods, techniques and evaluation criteria to obtain results and manages endeavors with significant impact to the university and of broad and diverse scope, size, impact, budget and team size. The Program Director independently functions across teams of 10-25 elite professionals, including those at the highest level of state agencies and medical institutions, and on projects with significant budgets starting at $1.2 million.
The success and effectiveness of the Program Director directly reflects UCSC's success and continued collaborations on this state-wide initiative. The Program Director regularly interacts with top officials at internal and external agencies, such as UCOP, CIAPM program office, UC Medical Centers and the California governor's office. Error in judgement or subpar execution of job functions may lead to loss of $1.2 million grant, staff layoffs, tarnished reputation as a UC leader in precision medicine, and diminished prospects of future development and funding opportunities.