Skip to main content
Premium Trial:

Request an Annual Quote

UPDATE: NIH, National Library of Medicine Partner on Precision Medicine Initiative Outreach

This article was updated with additional information from the University of Iowa.

NEW YORK (GenomeWeb) – The National Institutes of Health today announced today that it has partnered with the National Library of Medicine (NLM) to raise awareness about the Precision Medicine Initiative's (PMI) All of Us research program.

The PMI was launched in 2015 to gather genetic, health, lifestyle, and environmental information on one million people to fuel research into personalized healthcare. The All of Us program, formerly known as the PMI Cohort Program, is recruiting participants for this effort.

According to the NIH, the NLM's National Network of Libraries of Medicine (NNLM) has been awarded $4.5 million to support All of Us program community engagement efforts by public libraries and to improve participant access.

Under the three-year effort, the NNLM aims to increase the capacity of public library staff to improve health literacy; equip public libraries with information about the All of Us program to share with local communities; and assess the potential impact of libraries on participant enrollment and retention.

It will also work to highlight public libraries as a technology resource that participants can use to engage with the program, particularly in underserved communities; establish an online platform for education and training about All of Us and precision medicine, with resources for members of the public, health professionals, librarians, and researchers; and help identify best practices in messaging and outreach that lead to increased public interest and engagement in the program, the NIH said.

The University of Iowa noted that it will receive $3.6 million of the overall grant to act as a national coordinating center, to create and distribute educational information for All of Us. UI will be  charged with creating content to prompt people to enroll in the initiative.

"We want to reach participants where they are," All of Us Director Eric Dishman said in a statement. "For many people in the country, including those with limited internet access, one of those places is the local library."

Earlier this year, the NIH named the first All of Us community partners, which are raising awareness of the program with seniors, Hispanics and Latinos, African Americans, and members of the LGBTQ community.

The Scan

Positive Framing of Genetic Studies Can Spark Mistrust Among Underrepresented Groups

Researchers in Human Genetics and Genomics Advances report that how researchers describe genomic studies may alienate potential participants.

Small Study of Gene Editing to Treat Sickle Cell Disease

In a Novartis-sponsored study in the New England Journal of Medicine, researchers found that a CRISPR-Cas9-based treatment targeting promoters of genes encoding fetal hemoglobin could reduce disease symptoms.

Gut Microbiome Changes Appear in Infants Before They Develop Eczema, Study Finds

Researchers report in mSystems that infants experienced an enrichment in Clostridium sensu stricto 1 and Finegoldia and a depletion of Bacteroides before developing eczema.

Acute Myeloid Leukemia Treatment Specificity Enhanced With Stem Cell Editing

A study in Nature suggests epitope editing in donor stem cells prior to bone marrow transplants can stave off toxicity when targeting acute myeloid leukemia with immunotherapy.