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NIH Partners With 14 Community Groups, Healthcare Associations on Outreach for All of Us Program

NEW YORK (GenomeWeb) – The National Institutes of Health today announced it has selected 14 additional community partners for the Precision Medicine Initiative's (PMI) All of Us research program.

The PMI was launched in 2015 to gather genetic, health, lifestyle, and environmental information on one million people to fuel research into personalized healthcare. The All of Us program, formerly known as the PMI Cohort Program, is recruiting participants for this effort.

In July, the NIH selected the first four community partners for All of Us, which were tasked with raising awareness about the PMI among seniors, Hispanics and Latinos, African Americans, and the LGBTQ community. And in August, the NIH selected three networks of health provider organizations to help enroll and retain participants in All of Us.

The 14 national community groups and health care provider associations that have now partnered with the NIH will help raise awareness about All of Us. They will receive a combined $1 million to help educate their communities about precision medicine and the benefits of participating in the program.

"We want to build long-term relationships with our participants based on transparency and trust. These organizations will help us in that effort," Eric Dishman, director of the All of Us program, said in a statement. "We will look to them for input about what their communities want and need, as we work to create a research program that's meaningful for researchers and participants alike."

The organizations include the American Academy of Family Physicians in Leawood, Kansas; the American Academy of HIV Medicine, the American Association of Colleges of Nursing, the Black Women's Health Imperative, the Cobb Institute, the League of United Latin American Citizens, the National Hispanic Medical Association, the National Minority Quality Forum, and UnidosUS, all in Washington, DC; the American Medical Association in Chicago; the Arab Community Center for Economic and Social Services in Dearborn, Michigan; the Asian & Pacific Islander American Health Forum in Oakland, California; the Association of Nurses in AIDS Care in Uniontown, Ohio; and the National Baptist Convention in Nashville, Tennessee.

"The organizations will conduct a variety of activities as part of their involvement in the program, which may include holding events, gathering public input, training program ambassadors, leading social media campaigns, developing additional messaging that speaks to the value of participation for their communities and offering continuing education credits for health care providers," added Ronnie Tepp, HCM's principal investigator.