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Genetics & Genomics Policy & Legislation

News on government policy and legislation impacting life science and diagnostics.

Genomic data should be easily accessible to patients and their physicians through electronic health record systems with privacy safeguards.

The agency has asked for community input on the document, which is part of its efforts to focus future genomics research initiatives.

Two US representatives have requested details about the accuracy of the various SARS-CoV-2 diagnostics being used in response to the ongoing pandemic.

The $2.2 trillion economic stimulus package, aimed at bolstering the economy against the effects of the SARS-CoV-2 pandemic, has been signed into law by President Trump.

The international initiative will aim to produce information, tools, and policy models to help assess and prevent genetic discrimination.

The Hastings Center's Erik Parens argues in a Scientific American opinion piece that the current pandemic underscores the need to reconsider the hope placed in genomic medicine. 

The Los Angeles Times writes that Operation Warp Speed has an ambitious timeline for developing a COVID-19 vaccine.

The Sydney Morning Herald reports that Australia is launching its trial of preconception carrier testing Tuesday.

In PNAS this week: autosomal genes commonly affected by loss-of-function variants, variants implicated in testis development disorders, and more.