Genetics and Public Policy Center
Bioethicists Say Researchers Should Advocate for Use of Newborn Screening Samples
NEW YORK (GenomeWeb News) – Blood samples that are left over from newborn screening tests offer a treasure trove of research materials for scientists seeking to uncover the role of genes in diseases and health, and the science community should be pushing for policies that promote their use in res
A Cogent Research study of 1,000 US residents found decreasing interest in pharmacogenomics applications compared to previous years, while the number of respondents who fear that their genomic data could be used against them is on the rise.
ASHG Studies Shed Light on Consumers' Understanding of Gene Scan Reports, Response to Results
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The results of one study indicate that "there is room to improve the clarity of the information provided to customers in their personal genetic test result reports and the way the information is being delivered to them."
NIH's Genetic Testing Registry to Launch in 2011, But Will Dx Firms, Labs Voluntarily Participate?
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The NIH is hoping that its Genetic Testing Registry will serve as a resource for the public to learn about tests and locate laboratories that offer such tests, as well as facilitate data sharing among researchers. But since participation in the registry is voluntary, how will NIH convince test makers to participate?
GPPC Lands $1.6M from NHGRI for Study
The center will study public attitudes about large-scale population-based gene/environment interactions.
Aug 25, 2009
Paired Ends: Aug 25, 2009
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Aug 13, 2009
State Laws Could Cover DTC Gene Testing
Apr 22, 2009
Apr 22, 2009
Snippets: Apr 22, 2009
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Apr 21, 2009
GPPC Lands $750K Pew Grant
Apr 15, 2009
Snippets: Apr 15, 2009
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Apr 14, 2009
Survey: Vets Supportive of Genetic Cohort Study
Feb 25, 2009