Any short-term gains the bill may have on encouraging healthier lifestyles wouldn’t be worth the crippling effects it could have on the genomics field, leaders in the space said.
Some 50 groups have signed a letter expressing strong opposition to a bill that would allow workplace wellness programs to collect employees' genetic information.
NPR reports that patients have ever-larger sway on medical research, but some are concerned about commercial influences.
EEOC final rules provide employers clarity on wellness programs, but they may confuse the public about genetic privacy and anti-discrimination laws, some groups said.
Genetic Alliance researchers have come up with recommendations for the UK's NHS on how to incorporate whole-genome sequencing into standard cancer care.
The Genetic Research Privacy Protection Act would ensure that federally funded researchers can't reveal genetic data that can identify study participants.
Although there are many objections to EEOC proposed changes, some in the business community want more liberal regulations around wellness program inducements.
Using the platform, patients can control access to their clinical data and genetic testing results, potentially opening new avenues for rare disease research.
Recently introduced legislation would allow employers to ask people about their family medical history as part of financially incentivized wellness programs.
Originally published June 10.
The New York Times and ProPublica look into the close relationship between a startup and Memorial Sloan Kettering Cancer Center.
Yahoo News reports millions of dollars are being transferred from NIH, CDC, and other programs to pay for the housing of detained undocumented immigrant children.
In Science this week: in vitro generation of human reproductive cells, and more.
Researchers gave a handful of octopuses MDMA to find that they too act more social on the drug, Gizmodo reports.