Any short-term gains the bill may have on encouraging healthier lifestyles wouldn’t be worth the crippling effects it could have on the genomics field, leaders in the space said.
Some 50 groups have signed a letter expressing strong opposition to a bill that would allow workplace wellness programs to collect employees' genetic information.
NPR reports that patients have ever-larger sway on medical research, but some are concerned about commercial influences.
EEOC final rules provide employers clarity on wellness programs, but they may confuse the public about genetic privacy and anti-discrimination laws, some groups said.
Genetic Alliance researchers have come up with recommendations for the UK's NHS on how to incorporate whole-genome sequencing into standard cancer care.
The Genetic Research Privacy Protection Act would ensure that federally funded researchers can't reveal genetic data that can identify study participants.
Although there are many objections to EEOC proposed changes, some in the business community want more liberal regulations around wellness program inducements.
Using the platform, patients can control access to their clinical data and genetic testing results, potentially opening new avenues for rare disease research.
Recently introduced legislation would allow employers to ask people about their family medical history as part of financially incentivized wellness programs.
Originally published June 10.
An opinion piece in the New York Times urges lawmakers to keep genetic protections in place.
Research funding in Canada is to remain mostly the same, ScienceInsider reports.
In Science this week: random DNA replication errors play role in cancer, and more.
The Bill and Melinda Gates Foundation embarks on an open-access publishing path.