Genetic Alliance | GenomeWeb

Genetic Alliance

NPR reports that patients have ever-larger sway on medical research, but some are concerned about commercial influences.

EEOC final rules provide employers clarity on wellness programs, but they may confuse the public about genetic privacy and anti-discrimination laws, some groups said.

Genetic Alliance researchers have come up with recommendations for the UK's NHS on how to incorporate whole-genome sequencing into standard cancer care.  

The Genetic Research Privacy Protection Act would ensure that federally funded researchers can't reveal genetic data that can identify study participants.

Although there are many objections to EEOC proposed changes, some in the business community want more liberal regulations around wellness program inducements.

Using the platform, patients can control access to their clinical data and genetic testing results, potentially opening new avenues for rare disease research.

Recently introduced legislation would allow employers to ask people about their family medical history as part of financially incentivized wellness programs.

NEW YORK (GenomeWeb News) – The Oracle Health Sciences Network today announced the inclusion of Genetic Alliance into the network, creating a bridge "linking individuals in its crowd-sourced patient registry to clinical trials."

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In Science this week: metagenomic-based technique for determining protein structure, and more.

An academic laments the rise of narcissism in the sciences, the Guardian reports.

Outgoing FDA commissioner Robert Califf writes in an editorial that the agency can help boost innovation.

The Trump transition team has asked NIH Director Francis Collins to remain at his post, though it's unclear for how long that will be.