The statement recommends that germline genome editing in humans not culminate in pregnancy, but supports in vitro research into potential clinical applications.
Any short-term gains the bill may have on encouraging healthier lifestyles wouldn’t be worth the crippling effects it could have on the genomics field, leaders in the space said.
Some 50 groups have signed a letter expressing strong opposition to a bill that would allow workplace wellness programs to collect employees' genetic information.
The law contains provisions that proponents say will advance precision medicine and speed new tests to market, but critics worry if this will come at a cost to public health.
The database is intended to provide the research community with a resource of control cases to aid in the evaluation of variants of unknown significance in breast cancer.
EEOC final rules provide employers clarity on wellness programs, but they may confuse the public about genetic privacy and anti-discrimination laws, some groups said.
