With Insurers Reluctant to Pay for Genomic Testing, Some Patients Turning to Crowdfunding | GenomeWeb

NEW YORK (GenomeWeb) – KT Pickard and his wife Kimberly decided to forgo the traditional health system route to figure out the cause of their daughter's autism. In just two months, they opened an Experiment.com account, raised $1,750 to cover whole-genome sequencing for their daughter, and obtained preliminary results from her sequence data that might explain the cause of her autism.

The Pickards are not the only ones tapping their social networks and beyond to raise money for genome sequencing, particularly to determine the molecular cause of rare disease.

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