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All of Us Research Program, NICHD Team Up for Pregnancy Study

NEW YORK – The National Institutes of Health's All of Us research program said last week that it is collaborating with the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) on a pilot study of pregnancy.

The pilot seeks to enroll 100 All of Us participants who are pregnant into the ongoing NICHD's PregSource initiative, which collects patient-reported data during pregnancy through online questionnaires, including on nausea, sleep patterns, weight gain, and the use of prescription drugs, other medications, and supplements.

Participants can also compare their pregnancy experiences with other women in the program anonymously, and they gain access to a resource library with health information on pregnancy, breastfeeding, and child development. PregSource also plans to share de-identified data from pregnant women with the All of Us databank.

"This collaboration is designed to make both research programs more robust, diverse, and dynamic," said NICHD Director Diana Bianchi in a blog post on the institute's website.

The PregSource study has already enrolled more than 1,200 women, and the All of Us program has enrolled more than 3,500 women who were pregnant at the time they enrolled and completed a health survey.