ClinGen Adds Portal for Patients to Contribute their De-identified Data for Research | GenomeWeb

NEW YORK (GenomeWeb) – The Clinical Genome Resource, a National Institutes of Health-funded program to provide access to clinically annotated genes and variants, has launched GenomeConnect, an online portal for patients to voluntarily contribute their de-identified genotypic and phenotypic information to publicly available genomic databases such as the National Center for Biotechnology Information's ClinVar and to connect with other patients.

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