NHGRI Researchers Ponder When to Return Results to Relatives of Deceased Participants | GenomeWeb

Insights about disease risks gleaned from a person's genome sequence can be relevant not only to that individual, but also to his or her relatives. People participating in studies that yield clinically important information therefore often decide to share their results with family members. But what if the participant dies before he or she receives the results?

A study in the American Journal of Bioethics by members of the National Human Genome Research Institute's ClinSeq study addresses this issue.

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