NEW YORK (GenomeWeb News) – The Oracle Health Sciences Network today announced the inclusion of Genetic Alliance into the network, creating a bridge "linking individuals in its crowd-sourced patient registry to clinical trials."
As a result of Genetic Alliance joining the network, patients who participate in the non-profit health advocacy organization's Registries for All system can participate in trials for new therapies being carried out by other members of Oracle's network.
Registries for All is a platform in which participants can decide what specific information they want to share with specific researchers and research organizations. Under the alliance announced today, participants will have the ability to choose the amount and type of de-identified information they want shared with the Oracle Health Sciences Network.
Genetic Alliance works with drug manufacturers, as well as academic research organizations, in support of clinical trials for patients with genetic and rare diseases, and its membership in the Oracle Health Sciences Network will expand the patients, clinical, and genetic data available to those who use the network, Oracle said.
It added that this will be the first time that "grassroots crowd-sourced clinical data is connected to a national clinical data system."