NEW YORK (GenomeWeb News) – The Children's Hospital of Philadelphia will use a $1.8 million award to create a repository to store clinical records and data on patients who have tested positive for disorders in newborn screening tests, CHOP said on Tuesday.
The goal of the Long-Term Follow-Up Data Collection Tool is to expand the collection of data linked to newborn screening tests and, while protecting patient identities, enable researchers to study the data to develop new ways to screen for and treat diseases.