More articles about Policy & Legislation

Despite recent bills that argue the advent of NIPS will increase abortion, researchers say that there is not yet enough data.  

Tufts scientists and their colleagues called for steps to ensure that disadvantaged groups benefit from genetically based diagnoses and treatments.

The Senate will not act on its companion to the House-backed biomedical research funding bill before its summer recess, its health committee chairman said.

The House bill would boost the NIH's budget 4 percent to $33.3 billion, but the increase is less than that recommended by the Senate last month. 

The Institute for Clinical and Economic Review is seeking public comment on its plan to evaluate the cost-effectiveness of EGFR inhibitors and immunotherapies.

The investment, which will be paid out over the course of five years, comes in part from industry sources.

A member of the committee issuing a blunt report on the inadequacy of biomarker-based testing speaks about what the next Secretary of HHS needs to do.

The researchers will receive $2 million over three years to study the legalities of translating genomic medicine into clinical applications.

The proposed bill would provide the agency with a $2 billion budget increase for the second year in a row after more than a decade of stagnant funding.

EEOC final rules provide employers clarity on wellness programs, but they may confuse the public about genetic privacy and anti-discrimination laws, some groups said.

Four patients still want the government to investigate their allegations against Myriad, even though the firm complied with their data request at the last hour.

According to ASHG, the final rules, issued this week, will significantly weaken patient privacy protections under ADA and GINA.

Williams is within the time frame in which she can sue, her lawyers maintain, since she didn't know about the lab's "mistake" until last year.

Only 5 percent of respondents said they got tested through a consumer genomics firm, but the future market could be worth as much as $7 billion, analysts at UBS estimated.

Collins did not weigh in on the debate over mandatory versus discretionary budgets, but said that a reduction in NIH funding would be devastating.

The Genetic Research Privacy Protection Act would ensure that federally funded researchers can't reveal genetic data that can identify study participants.

Since CMS has yet to issue a final rule, legislators are worried that the agency will "improperly rush" implementation to meet the Jan.1, 2017 deadline.

The suggested funding is part of Trudeau's proposed 2016 federal budget, which also includes additional financial support for agricultural genomics research.

Since the PMI will take some time and more funds to implement, experts believe legislation is needed to ensure the project has continued support.

FASEB urged Congress to provide the NIH and NSF with increased budgets, citing the importance of biomedical research to human health and the US economy.

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British Nobel laureates and Fields Medal winners warn that a 'hard' Brexit could harm science across the UK, the Guardian reports.

Vox reports on inequities in genetic research and efforts to address them.

The New York Times reports that Arizona State University's Lawrence Krauss is retiring following allegations of sexual misconduct.

In PNAS this week: de novo NUS1 mutations linked to Parkinson's disease risk, candidate hepatocellular carcinoma drivers, and more.