informed consent
Secondary Genetic Findings Often Requested if Given Second Chance, Study Finds
The researchers said their findings support a switch to a model in which providing secondary findings is the default, with an opt-out mechanism.
Q&A: Georgetown's Subha Madhavan on the Role of Translational Bioinformatics in Precision Medicine
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Madhavan believes that the TBI community is well positioned to contribute to Precision Medicine Initiative projects both from an infrastructure and data standpoint.
Study Highlights Diversity of Strategies to Consent Patients for Return of Sequencing Results
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NEW YORK (GenomeWeb) — As efforts march forward to study the utility, as well as the medical and psychosocial impact of clinical sequencing, the field eagerly awaits best practices for how to obtain patient consent to receive the results of broad genomic analysis.
NIH Issues Final Policy on Genomic Data Sharing
NEW YORK (GenomeWeb) – Nearly a year after opening a comment period on a draft policy proposal for how researchers should share data from human and non-human genomics research projects, the Nat
This is the fourth in a series of profiles of projects awarded NHGRI grants to develop policy guidelines on how and when to disclose secondary information to the subjects of genomic research studies.