Close Menu

GINA

A Cogent Research study of 1,000 US residents found decreasing interest in pharmacogenomics applications compared to previous years, while the number of respondents who fear that their genomic data could be used against them is on the rise.

A new report suggests that a growing number of consumers are concerned about genetic privacy, and that neither the public nor doctors are familiar with genetic privacy laws.

The final regulations detailing GINA's employer section aim to simplify rules and definitions, and to provide safe harbor and guidance for businesses.

Restrictions in GINA could muddy payors' disease risk prediction models, though it remains to be seen the degree to which the law will "deteriorate" those predictions, Derek van Amerongen, chief medical officer of Humana Health Plans of Ohio, said last week at a conference.

In an attempt to help guide healthcare stakeholders who wish to issue public comments to the interim final GINA rule, Johns Hopkins University's Genetics & Public Policy Center released a model document discussing GINA's underwriting restrictions and how they impact health risk assessments and wellness programs.

While DMAA and employer groups are urging for a moratorium on GINA fearing that the law's restrictions on "underwriting" activities will harm enrollment in wellness programs, personalized medicine advocates are concerned that any delay in implementing the law as is would harm adoption of personalized medicine and hinder participation in genetic research studies.

Pages

Bloomberg reports that the DNA-for-cash deal reported in Kentucky might be a more widespread scam.

St. Jude Children's Research Hospital scientists have treated infants with X-linked severe combined immunodeficiency using gene therapy in an early phase study.

St. Louis Public Radio reports that some African Americans are turning to DNA ancestry testing to help guide genealogical searches.

In Nature this week: a genomic analysis of the snailfish Pseudoliparis swirei, ancient DNA analysis gives insight into the introduction of farming to England, and more.