genetic privacy

In an editorial, the Washington Post calls on Congress to develop privacy standards to govern genetic testing companies.

The protocol could lead to greater regulatory harmonization in Europe, where every country has its own national legislation covering genetic testing.

It will be possible to upload genomic data to Australia's My Health Record system, which has raised privacy issues, the Sydney Morning Herald reports.

Indian DTC genomics company Mapmygenome has enlisted Israel-based Digital DNAtix to move its interpretation and personalized medicine services to a blockchain.

Support and Trust

My Gene Counsel's Ellen Matloff says Facebook needs to regain the trust of patient groups that used its closed groups for support.

A number of consumer genetic testing companies are adopting best practice guidelines for customer privacy, the Washington Post reports.

MyHeritage experienced a data breach in which all of its users' email addresses were exposed, according to Stat News.

Consent — and the right to withdraw it — underlies the EU's newly effective General Data Protection Regulation for researchers in Europe and beyond.

New York Senator Charles Schumer cautions that genetic testing companies could sell consumers' genetic data, the New York Post reports.

Keep It Secret

A cryptographic approach could help researchers keep genomic data private while researchers analyze it, Scientific American reports.

Pages

The New York Times and ProPublica look into the close relationship between a startup and Memorial Sloan Kettering Cancer Center.

Yahoo News reports millions of dollars are being transferred from NIH, CDC, and other programs to pay for the housing of detained undocumented immigrant children.

Researchers gave a handful of octopuses MDMA to find that they too act more social on the drug, Gizmodo reports.

In Science this week: in vitro generation of human reproductive cells, and more.