bioethics | GenomeWeb

bioethics

Questions about the ethics of alerting people to their cancer risk without their consent have frustrated DeCode Genetics' vision of using genetics to improve public health.

COLD SPRING HARBOR, NY (GenomeWeb) – At an ethical, legal, and social implications (ELSI) panel at the Biology of Genomes meeting here yesterday afternoon, legal experts discussed the current climate surrounding gene patenting and the key court cases leading up to it.

NEW YORK (GenomeWeb News) – The University of California, San Francisco, Kaiser Permanente, and the UC Hastings School of Law will use a $780,000 grant from the National Human Genome Research Institute to create a new center that will focus on the ethical, legal, and social implications of the us

BOSTON (GenomeWeb News) – A panel at the American Society of Human Genetics annual meeting today discussed whether researchers have an obligation to return results, particularly so-called incidental findings, from genetic studies to research participants.

NEW YORK (GenomeWeb News) – A pair of articles published online today in Science debate the pros and cons of returning incidental findings from clinical sequencing tests.

NEW YORK (GenomeWeb News) – The Obama Administration's bioethics advisory panel plans to write a report on how researchers, clinicians, and direct-to-consumer testing firms should handle any incidental but potentially important health-related and genetic information they discover while testing in

NEW YORK (GenomeWeb News) – The Wellcome Trust Sanger Institute has launched an online survey to collect the views of "ordinary people" about how personal genomic information should be used in medical research and by agencies

NEW YORK (GenomeWeb News) – Blood samples that are left over from newborn screening tests offer a treasure trove of research materials for scientists seeking to uncover the role of genes in diseases and health, and the science community should be pushing for policies that promote their use in res

NEW YORK (GenomeWeb News) – An Obama Administration panel today released a dozen recommendations drafted to help create policies for securing whole-genome sequencing data, with the aim of protecting individual privacy without hampering the use of genome sequencing in research and medicine.

NEW YORK (GenomeWeb News) – The Presidential Commission for the Study of Bioethical Issues is getting closer to finalizing a set of recommendations for steps the White House could take to address privacy concerns stemming from the increased use of whole genome sequencing for research and clinical

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In Science this week: metagenomic-based technique for determining protein structure, and more.

An academic laments the rise of narcissism in the sciences, the Guardian reports.

Outgoing FDA commissioner Robert Califf writes in an editorial that the agency can help boost innovation.

The Trump transition team has asked NIH Director Francis Collins to remain at his post, though it's unclear for how long that will be.