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Seqster, National Pancreas Foundation Partner on Pancreatic Disease Registry

NEW YORK – Seqster said Tuesday that it is partnering with the National Pancreas Foundation to create a registry of patients with pancreatic disease.

The San Diego-based genomic data aggregator collects individuals' health data from wearables, consumer genetic tests, electronic health records, and social determinants of health to create regularly updated longitudinal health records. Under the partnership, patients with pancreatitis, pancreatic cancer, and related conditions will be able to share their data to the registry to support research efforts.

Jane Holt, cofounder of the National Pancreatic Foundation, said that the Seqster platform will make it easier for researchers to analyze, visualize, and query data from patients with pancreatic conditions. "This will lead to a deeper understanding of novel therapies, predictive biomarkers, and significantly improved patient outcomes," she said in a statement.

NPF CEO David Bakelman said that the organization had been looking for a "patient-centric solution" for years until Seqster came along. "Now, we can enable greater collaboration amongst researchers and our foundation, improve the quality of patient care, and significantly impact outcomes for patients with pancreatic disease," he said.

"The NPF-Seqster registry is a giant step forward for healthcare researchers and patients suffering from chronic pancreatic disease, providing full visibility into health data and connecting disparate data sources," added Seqster cofounder and CEO Ardy Arianpour. "This is especially critical for pancreatic disease patients receiving care across multiple providers and geographies."

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