This Week in Nature

In Nature this week, two National Institutes of Health officials discuss the agency’s agreement with the family of Henrietta Lacks, who unwittingly became the source for the HeLa cell line, to gain access to the cells’ genomic data. Sequence data will be placed in a controlled-access database, and researchers will be required apply to the NIH to use it in a specific study. They must also agree to terms of use defined by a panel, which will include members of the Lacks family.

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In an against-all-odds twist, a researcher studying exceeding rare FOXG1 mutations discovers her daughter has the syndrome.

An effort by Genomics Medicine Ireland is creating a database of diseases based on the genomics of people in Ireland. It now is looking into the possibility of including Scotland in its work.

In recent weeks, the direct-to-consumer genetics firm has rolled out a health hub where customers can share information concerning 18 common health conditions.

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