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We Laughed, We Cried, We Kept Reading More

It's not every day we get to (or want to) recommend reading a law journal. But Genomics Law Report has put together a great assembly of articles on ELSI in a series called "What ELSI Is New?" Misha Angrist offers an entertaining essay to get clinical geneticists ready for an onslaught of patients who have their DNA information, while Bob Cook-Deegan explores the ethical challenges coming down the pike as sequencing takes off and thousands of DNA patents exist. Esther Dyson pitches in a piece entitled "How will we handle the capability and responsibility of creating human life according to spec?" Meantime, Genetic Alliance's Sharon Terry calls for a registry of genetic tests, and HudsonAlpha's Chris Gunter says it's time to rethink how science is communicated to the non-scientific world. There are plenty of other great entries in the series, so check out the whole thing.

The Scan

Study Finds Few FDA Post-Market Regulatory Actions Backed by Research, Public Assessments

A Yale University-led team examines in The BMJ safety signals from the US FDA Adverse Event Reporting System and whether they led to regulatory action.

Duke University Team Develops Programmable RNA Tool for Cell Editing

Researchers have developed an RNA-based editing tool that can target specific cells, as they describe in Nature.

Novel Gene Editing Approach for Treating Cystic Fibrosis

Researchers in Science Advances report on their development of a non-nuclease-based gene editing approach they hope to apply to treat cystic fibrosis.

Study Tracks Responses in Patients Pursuing Polygenic Risk Score Profiling

Using interviews, researchers in the European Journal of Human Genetics qualitatively assess individuals' motivations for, and experiences with, direct-to-consumer polygenic risk score testing.