Members of Coriell's personalized medicine project recently received an email instructing them to log into the Coriell Web portal to activate their accounts, says a post at ThinkGene. Upon logging in, though, you have to sign a new consent form -- or otherwise withdraw your agreement to participate. Andrew Yates details some of the highlights of the new consent form, which is more rigorous, but he's a bit shocked that one of his favorite personal genomics projects would have launched too quickly in the first place. "While I have outstanding respect for the Coriell PMC ... collecting samples first and revising core consent terms months later is a troubling precedent," he writes. "I hope that future genomic companies do not use this precedent to excuse sloppy pre-launch collections of biological samples. Be on the lookout..."
Sloppy Science in Personal Genomics
Feb 12, 2009