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Hey, You, Stop Hoarding that Data

From the Access to Knowledge Conference, Victoria Stodden blogs about a presentation by Sanger's Tim Hubbard. In the talk, he "laments that scientists tend to carry out their work in a closed way and thus very little data is released," she writes. In addition to concerns about maintaining privacy for research subjects and patients, he said another challenge is releasing data in a way that will let others use it. "Hubbard is touching on what might be the most important part of the Access to Knowledge movement - how to make the access meaningful without destroying incentives to be open," Stodden blogs.


The Scan

Positive Framing of Genetic Studies Can Spark Mistrust Among Underrepresented Groups

Researchers in Human Genetics and Genomics Advances report that how researchers describe genomic studies may alienate potential participants.

Small Study of Gene Editing to Treat Sickle Cell Disease

In a Novartis-sponsored study in the New England Journal of Medicine, researchers found that a CRISPR-Cas9-based treatment targeting promoters of genes encoding fetal hemoglobin could reduce disease symptoms.

Gut Microbiome Changes Appear in Infants Before They Develop Eczema, Study Finds

Researchers report in mSystems that infants experienced an enrichment in Clostridium sensu stricto 1 and Finegoldia and a depletion of Bacteroides before developing eczema.

Acute Myeloid Leukemia Treatment Specificity Enhanced With Stem Cell Editing

A study in Nature suggests epitope editing in donor stem cells prior to bone marrow transplants can stave off toxicity when targeting acute myeloid leukemia with immunotherapy.