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The Go-To Guy

In Newsweek, Kirk Maxey discusses his reasons for joining the Personal Genome Project — Maxey was a major sperm donor for a fertility clinic in Michigan for about 14 years.

"I had this 'Oh my God' moment, thinking, how many kids have been produced?" he says. "I thought the doctors were keeping track of each birth, but when I realized they weren't, I began to worry. What if they start dating one another?" He also began to worry about their genetic health. "I wanted to know if I have anything totally lethal or deranged or recessive in my genes that I may have passed along."
The Scan

Study Finds Few FDA Post-Market Regulatory Actions Backed by Research, Public Assessments

A Yale University-led team examines in The BMJ safety signals from the US FDA Adverse Event Reporting System and whether they led to regulatory action.

Duke University Team Develops Programmable RNA Tool for Cell Editing

Researchers have developed an RNA-based editing tool that can target specific cells, as they describe in Nature.

Novel Gene Editing Approach for Treating Cystic Fibrosis

Researchers in Science Advances report on their development of a non-nuclease-based gene editing approach they hope to apply to treat cystic fibrosis.

Study Tracks Responses in Patients Pursuing Polygenic Risk Score Profiling

Using interviews, researchers in the European Journal of Human Genetics qualitatively assess individuals' motivations for, and experiences with, direct-to-consumer polygenic risk score testing.