Skip to main content
Premium Trial:

Request an Annual Quote

GINA Takes Hold

GINA will be taking effect November 21 for businesses with 15 or more employees and December 7 for group insurance plans, this New York Times article reminds us. GINA bars employers from requesting that an employee undergo genetic testing and from considering an employee's genetic background when making hiring, firing or promotion decisions. Health insurance companies are also not allowed to use genetic information to deny coverage or to set rates. "There's an absolute ban on the use of genetic information to make any kind of decision about employment," says Christopher Kuczynski, assistant legal counsel with the Equal Employment Opportunity Commission.

The Scan

Positive Framing of Genetic Studies Can Spark Mistrust Among Underrepresented Groups

Researchers in Human Genetics and Genomics Advances report that how researchers describe genomic studies may alienate potential participants.

Small Study of Gene Editing to Treat Sickle Cell Disease

In a Novartis-sponsored study in the New England Journal of Medicine, researchers found that a CRISPR-Cas9-based treatment targeting promoters of genes encoding fetal hemoglobin could reduce disease symptoms.

Gut Microbiome Changes Appear in Infants Before They Develop Eczema, Study Finds

Researchers report in mSystems that infants experienced an enrichment in Clostridium sensu stricto 1 and Finegoldia and a depletion of Bacteroides before developing eczema.

Acute Myeloid Leukemia Treatment Specificity Enhanced With Stem Cell Editing

A study in Nature suggests epitope editing in donor stem cells prior to bone marrow transplants can stave off toxicity when targeting acute myeloid leukemia with immunotherapy.