Fabry Patients Ask for Help | GenomeWeb

For almost two years, patients with Fabry's disease have been dealing with severe shortages of the medicine they need — Genzyme's Fabrazyme — as Genzyme deals with manufacturing problems and contamination. A year ago, the patients asked NIH to step in and demand that Genzyme allow other drug companies to make Fabrazyme, a provision known as "march-in" rights that NIH can exercise under certain circumstances according to the Bayh-Dole Act.

Get the full story

This story is free
for registered users

Registering provides access to this and other free content.

Register now.

Already have an account?
Login Now.

The Wall Street Journal reports that National Institutes of Health Director Francis Collins' response to contamination concerns at the agency might have delayed care.

The final revision of the Common Rule doesn't include the proposed change requiring consent for leftover biospecimens.

The first Reproducibility Project: Cancer Biology papers show mixed results.

In Nature this week: mobile phone-based targeted DNA sequencing, and more.