The Ewing Marion Kauffman Foundation, in conjunction with other funders, is launching The Portable Legal Consent for Common Genomics Research, a system that researchers can use to donate their data to large public databases, says Nature News' Erika Check Hayden. The group says the point of the system is to "create the world's largest pool of openly available, user-contributed data about health and genomics." Users can remove identifying details of their data before they submit it, Hayden says. "The databases then assign an identification number to all of the data from each user and deliver the de-identified data to researchers, who must agree to broad conditions designed to prevent harm to the data contributors," she adds. The project's developers hope it will give researchers more access to larger pools of data, which can then be used in large studies.
Data for Everyone!
Apr 26, 2012