Data Control and Sharing

Premium

From 1990 to 1992, the Havasupai Indians in Arizona participated in a study by researchers at Arizona State University that was to look into why the tribe had such a high rate of diabetes. The Havasupai gave blood samples to the researchers, and later found that those samples had been used to study a range of things — from ancestry to mental illness — that the Havasupai had not approved. The tribe then sued Arizona State, the Arizona Board of Regents, and three professors. Last year, Arizona State agreed to pay the Havasupai $700,000 and to return the samples.

Get the full story with
GenomeWeb Premium

Only $95 for the
first 90 days*

A trial upgrade to GenomeWeb Premium gives you full site access, interest-based email alerts, access to archives, and more. Never miss another important industry story.

Try GenomeWeb Premium now.

Already a GenomeWeb Premium member? Login Now.
Or, See if your institution qualifies for premium access.

*Before your trial expires, we’ll put together a custom quote with your long-term premium options.

Not ready for premium?

Register for Free Content
You can still register for access to our free content.

The US Food and Drug Administration has new guidelines that enable some gene and cell therapies to undergo expedited review, according to the New York Times.

Using gene drives to control invasive species might be too risky, an initial advocate of the approach says.

In Science this week: intellectual property experts argue patent battles such as the one over CRISPR are wasteful, and more.

Researchers have grown tumors in 3D cell cultures to better understand cancer, the Economist reports.