What GINA Misses

Employers and health insurers cannot discriminate on a genetic basis, but nothing in the federal legislation says other types of insurers can't turn away people they deem too risky.

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Congresswoman Slaughter

Congresswoman Slaughter introduced the bill that was to become GINA back in 1995 (13 years before it finally passed), called the Genetic Information Nondiscrimination in Health Insurance Act of 1995 (H.R.2748: http://www.govtrack.us/congress/bills/104/hr2748).

She did this six years before the first human genome project was published knowing that discrimination would be an issue that could potentially stop people from benefiting from genetic testing and impede genomic research. I’ve always admired that she is a pioneer among politicians in consideration of her love of science and especially her foresight on this issue.