Advantage, Data

Researchers argue for better access to genetic databases.

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So researchers demand to have

So researchers demand to have for free that which others have already paid for, often paid for by the very person from whom the researchers intend to accrue benefit by studying.

And that isn't even the most offensive aspect of the demand. It would be one thing if the phenotype/genotype associations could be done anonymously but the modern reality is that genotype infomation complex enough to have much value in association studies becomes a highly precise fingerprint for identifying a particular individual. No more unliked studies I'm afraid.

But if the "researchers" want the data that badly, they do have recourse - they simply need to find out what it is worth to the other stakeholders, obtain informed consent and compensate them at some premium over what the stakeholders feel the information is worth.